The Jeremy Project: Walk in My Shoes

The Jeremy Project: Walk in My Shoes

  • 流派:Rap/Hip Hop
  • 语种:英语
  • 发行时间:2015-04-01
  • 类型:Single

简介

“One of the joys of music is the extraordinary people it brings into our lives….” That was how we began a blog post last April about our friend Jeremy Waggoner, who lived for 29 years with the debilitating genetic disorder Spinal Muscular Atrophy. We got to know Jeremy and his family through our performances at the Texas Jazz Festival and followed their journey over the years. His songwriting and poetry—and his family’s love and dedication to ensuring that he lived the fullest life possible—showed us the best of being human. In the normal course of our lives, we came to know others struggling with the same condition: the sweet-spirited son, now deceased, of a talented musician; a Facebook friend and tireless activist, now in her 50s, whose sense of humor and fighting spirit constantly inspire us. Jeremy wrote about the frustration of being an intelligent, creative, and sociable individual living in a body in which disease undermined the basic functions of breathing, eating, and communication. He wrote about the simple joys of life that we often take for granted, and about his family’s exhaustive battle to obtain consistent quality care. We were inspired by his writing to compose and record “The Jeremy Project: Walk in My Shoes,” a song which shares the title of his published poetry collection and strives to give a glimpse of his journey. We visualize a society in which families dealing with devastating illness will have ready access to the support they need instead of struggling with financial and bureaucratic obstacles. Until we can grow the political will to bring that about, a donation to Cure SMA is one step we can take. Download this music; all proceeds go to Cure SMA. Please share on Facebook and email, and invite others to do so. Listen to it on Spotify and Pandora, and share it wherever you can. Every download, every like, every click counts in the search for a cure.

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